My Uncle Seth is one of my biggest heroes.
I only met him about 4 1/2 years ago; he is married to my biological Aunt Amy. When my sister and I found our birth mom, we were introduced to her entire family including Seth and Amy and their adorable kids.
Seth was diagnosed 8 years ago (in 2010) with ALS , which is a degenerative disease that affects the muscular and nervous system.
He jumped to action, and co-founded ALS Crowd Division of the CrowdCare Foundation. ALS Crowd helps aggregate and share the latest research and allows patients to connect with one another; it also offers information about treatment options and supports research and development of new ALS clinical trials.
Beyond being one of the funniest, wittiest, most poetic, and kindest people in my life, he is also one of the bravest. And I find so much strength and inspiration through him and his family members more than I think they will ever know.
A few weeks ago I had the opportunity to go meet up with them in Portugal, along with my biological grandparents and my other biological Aunt Debbie, as they embarked on an international adventure to further their reach with ALS Crowd collaborating with Project MinE. I jumped on the chance to spend time with them there.
Being around them, and feeling their positive energy and light, and seeing the good work and progress they are making in the medical world with ALS research truly is remarkable. It makes me want to do more and help them with their cause!
To Seth, Amy, Sam, Ellie, Jayne, and Jake: Thank you all for being the incredible humans that you are. Your light, your love, and your courageous hearts inspire me (and I know so many, many others!) to do more, to be more, to make this world a better place by any means possible. I am proud to know you, I am proud to call you family.